It is a dream to become a parent, and complete your family, but sometimes not all dreams are a fairytale….&nbsp; My loved one came as joy in 2015, us as parents not knowing what the next 2-3 years are going to be for us. My LO developed some major form of epilepsy when he was just 3 months old. Started our journey of specialists and ER, for the next 2 months the doctors tried different medicines and different procedures to fix it, with no improvement, by the time we were getting into the 3rd month of treatment visits to ER were becoming a norm, multiple MRI’s numerous EEG’s. He was diagnosed with a rare form of epilepsy Infantile Spasms with no confirmed treatment, and this thing if it does not go away within a year can be life threatening.He was started on some steroids as a treatment which made immunity very low and other side effects of it.Visits to the hospital became every 2nd day, an EEG every week, so much so we used to keep praying every visit that EEG would come normal, waveforms should be a normal pattern.Prayed everyday, which gave the strength to move forward with a new day.Finally 3 months into it we decided to change our country and goto a better place for his best treatment. We moved to a different country for better treatment, in just 2 days, people plan for moves like this for months and years, but we just had 2-3 days of timeframe when my LO immunity was a little better to travel. Welcome Canada, same procedures and trying different medications started, with another 3 months into treatment, doctors came up with a final resort of ACTH injections to stop his epilipetic seizures, I still dread those days as a father as we were to keep a count of how many seizures he had in a day, and make a journal of it. ACTH started, it was a course of 10 weeks I guess, side effects being my child will have no immunity during this period. But with the first injection of it, his seizures were controlled to 90%, 2nd dose 95%, 3rd Dose 100%, it was a 10 week course with 1 injection every week, we had a glimmer of hope and a little joy that it was getting better. My Loved one was 9 months old by then, and this new treatment showing positive signs we were a bit happy, he developed high fever when he was into 7th week of medication course, went to the ER, since his immunity was very low, doctors ran some scans,from there we were transferred to children's hospital immediately. Our hearts were pounding to what's happening, stayed in the hospital for 2days with doctors running a lot of scans and trying to figure out the source of fever, 3rd day a doctor walks in and breaks the news, my loved one has Cancer, I was shattered as a parent, I was already dead with the journey so far now this, man I wish no one ever sees a day like that… It took us a lot of hours to face the new truth now, while doctors were having conferences to figure out if ACTH should be stopped as chemo will have to start, can they do both, doctors used to come in &amp; out of our rooms every 1 hr, we were so tired, or tears had dried up. With a thought of just being dead.At this time God was our saviour, he gave us the strength to live, we had some visions and signs of God saving my child and how. Started the process of chemo alongside his ACTH.&nbsp;Weeks passed when ACTH stopped,&nbsp; his epilepsy got over, we didn't even get to know, as we were stuck in the vicious cycle of chemo. I will pause here to thank God, for getting us out of his epilepsy, as I believe we focus so much on the bad and miss what good happened. Chemo process, I heard a lot about it, but to experience it is another thing. Hospital visits twice a week, if blood cells fall, get hospitalized for days till blood cells are back up. Keeping a count of blood work was our new journal now, by this time my LO was 2 yr old. Living with his low immunity, not catching on his milestones, feeding him, restless nights had become our new normal. God gave my wife a dream blessing that he will be cured, and so he was by the time he was 2 years old his treatment had stopped. Some medications had to be continued for another 1 year, which made him super nauseated and drowsy, but by the time he was 3 all medications stopped. He started to catch on his milestones He is 4 years old now all hale &amp; hearty, super active. When I see him I count my blessings. Some part of it gives me the peace that he will never remember that traumatic journey, he was so small, it was the journey of us parents. There is a lot of inner healing that is happening as the storm uprooted us and really broke us, still picking up the shattered pieces everyday, but with God’s blessings everyday is brighter…..Trying to live my life with the attitude of gratitude now.Thanks to this wonderful platform I could be anonymous and pour my heart out, as in the real world you live with layers of masks, of a husband, son, professional trying to hold a strong front. Love for all…..JGJ

It is a dream to become a parent, and complete your family, but sometimes not all dreams are a fairytale….  My loved one came as joy in 2015, us as parents not knowing what the next 2-3 years are going to be for us.

I can relate so much to your story, just got married last year and I'm somewhat going through the same journey, I hope the outcomes of my journey are the same but reading yours is giving me the encouragement of positive outlook and going forward. god bless you and your child.

I can relate so much to your story, just got married last year and I'm somewhat going through the same journey, I hope the outcomes of my journey are the same but reading yours is giving me the encouragement of positive outlook and going forward. god bless you and your child.